About Potters Sequence

Potters syndrome/sequence is a complicated disorder, and therefore every case presents in a unique way.

Typically Potter's babies do not have kidneys, but our Oliver did have kidneys.  His form of Potter's was caused by a section of his urinary tract not developing properly, which lead to his bladder being distended, which lead to his kidneys being polycystic, which caused a low level of amniotic fluid (5% of the normal amount), and therefore resulting in poor lung development as well as a number of other issues.

I found this website of particular help.  Here is an explanation they have offered for people looking for information on Potter's...

from http://www.potterssyndrome.org/
 Potter's Syndrome is one of several serious or fatal kidney abnormalities.  In Potter's (or Potter) syndrome the baby's kidneys do not develop in the first few weeks of life in the womb.  The baby's kidneys are essential for the production of amniotic fluid in the womb.  If there are no kidneys, there is little or no amniotic fluid (this is known as oligohydramnios) to expand the womb around the baby and to allow the baby to grow and move.  The womb remains small and in its confined space the baby's lungs cannot develop properly.  Many babies with Potter's syndrome are stillborn.  In those who are born alive, the immediate cause of death is failure to breathe (respiratory failure) due to underdeveloped (hypoplastic) lungs, usually one or two days after delivery.  Even if this problem is treated the baby cannot survive without kidneys.  (Potter's syndrome is also known as Renal Agenesis, which simply means that the kidneys did not develop).
    Potter's sequence is the name given to a condition which resembles Potter's syndrome in that although the baby has kidneys, there is little or no amniotic fluid (oligohydramnios).  This may sometimes be because the mothers waters have broken in mid-pregnancy, or due to developmental problems in the baby's kidneys or urinary system.  In Potter's sequence, as in Potter's syndrome, the baby's lungs are compressed and cannot develop properly.  The baby dies of respiratory failure within one or two days of delivery (subnote: although shorter and longer lifespans do exist).

(Excerpt taken from:  When a Baby Dies by Nancy Kohner and Alix Henley)


  1. I'm so sorry about your sweet Oliver. My Evie died of a condition very similar, although the doctors never were able to label it. She was formed without a bladder and as a result could not make the proper amount of amniotic fluid.

    I'm thinking about you and saying a prayer for you especially today, Mother's Day, for your two sweet boys in Heaven. <3

    1. Thank you Sarah. I came across your blog the other day, and the story of your dear Evie touched my heart too. I really appreciate your message here, and your openness on your blog. Sending you my thoughts on this Mother's Day too xx


thanks for taking the time to comment

Related Posts Plugin for WordPress, Blogger...